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Support Organizations/Resources for Parents with Kids Battling Cancer
Dana-Farber Cancer Institutewww.dana-farber.org
The Jimmy Fund
www.jimmyfund.org
Since its founding in 1948, the Jimmy Fund has supported the fight against cancer in children and adults at Boston's Dana-Farber Cancer Institute, helping to raise the chances of survival for cancer patients around the world.
Candlelighters Childhood Cancer Foundation
www.candlelighters.org
Founded in 1970, Candlelighters has more than 40,000 members worldwide. Some of the free services provided by Candlelighters are a yearly bibliography and resource guide, quarterly newsletter, and various handbooks to help families of children with cancer.
Patient Advocacy Committee of the Children's Oncology Group (PAC)
www.acor.org
The Patient Advocacy Committee was instituted by COG to include the perspectives and input of childhood cancer survivors and families in the design and implementation of cooperative group clinical trials. PAC members, who have been involved in the pediatric cancer experience as survivors of childhood cancer, parents or family members or as professionals working with children, are called upon to offer liaison representation and advice to COG scientific and administrative committees.
American Cancer Society
www.cancer.org
Has a national network of employees and volunteers who implement research, education, and patient service programs. Although programs differ according to state and province, some widely available programs are patient-to-patient visitation, transportation to appointments, housing near treatment centers, equipment and supplies, support groups, literature on a large variety of topics, summer camps for children with cancer, research and educational programs.
Childhood Cancer Ombudsman Program
www.childhoodbraintumor.org
This free service helps children with cancer and their families who are experiencing difficulties in gaining access to appropriate education, medical care, healthcare cost coverage, and meaningful employment. Services include medical library searches, a second opinion program, and help resolving problems with insurance or discrimination.
National Children's Cancer Society
www.nationalchildrenscancersociety.org
The mission of The National Children's Cancer Society is to improve the quality of life for children with cancer and their families by providing financial and in-kind assistance, advocacy, support services and education.
Children's Cancer Society Inc.
www.ChildrensCancerSociety.com
"Our mission is to provide financial support to families that have a child with cancer and the costs of the cancer treatments are causing financial difficulties. If your family is having financial difficulties do to a cancer illness, we maybe able to help. We can run special fundraising programs for you and try to raise money to help you.“
CancerCare
www.cancercare.org
CancerCare is a national non-profit organization whose mission is to provide free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance.
Gilda's Clubs
www.gildasclub.org
Different Gilda's Clubs have different programs for children with cancer and their families, but potentially a clubhouse could have groups for children and teens with cancer, groups for siblings, and groups for parents. Also a big part of Gilda's Club is workshops and classes - anything from art workshops to informational type things (like Ask the Doctor, Insurance Q & A, etc) and social events. Visit the Gilda's Club Worldwide website (www.gildasclub.org) and check if there's a Gilda's Club in your area, then call the individual clubhouse to find out what they offer.
Squirrel Tales
www.squirreltales.com
An uplifting and practical site to encourage and empower parents of kids with cancer.
CureSearch
www.curesearch.org
KidsCope
www.kidscope.org
We are a non-profit organization dedicated to developing and distributing educational and support materials designed from a child's perspective. Our goal is to help kids understand, rather than fear, the side-effects of cancer treatments and find ways to cope with the effects of cancer in the family during treatment and beyond while offering hope and a positive outlook. With increased knowledge of the challenges to come, we believe that parents will be better able to assist their children.
Okizu
www.okizu.org
Okizu is a comprehensive support program for children with cancer and their families, providing Summer Camps for patients and for siblings, weekend Family Camps & support groups, Teens & Twenties programs, and a Bereavement Camp.
Children’s Cancer Association
www.childrenscancerassociation.org
Provides information and resources for children and families affected by cancer.
Parents and Children Fighting Cancer
www.homestead.com
Provides both financial and emotional support to families who are battling some form of childhood cancer or other serious disease.
Michael Hoefflin Foundation
www.mhf.org
Provides grant funding for innovative pediatric cancer research, programs for outreach and family support, and public education related to childhood cancer.
I[2]Y
www.imtooyoungforthis.org
connect young cancer patients with hundreds of young adult resources and open the door to network with countless others battling the same challenges.
